Tag: doctor

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Clinical General Healthcare Costs Healthcare Disparities Law Public Health Quality Improvement

On Public Charge

A step forward or a step back from self-sufficiency?

By: Souma Kundu

At the start of 2020, I remember the Trump administration celebrating what it saw as a victory for “self-sufficiency,” and “protecting law-abiding legal citizens from undue tax burdens”. Following a battle in the lower court, in a much-anticipated Supreme Court ruling, the court sided 5-4 with the administration, allowing enforcement of the 2019 expansion of the Public Charge rules.

This court ruling on Public Charge marks only the latest iteration of a policy dating back to the 1882 Immigration Act. While the definition and enforcement has varied over time, the essence of the law remains true to its origins: immigrants who are deemed unable to take care of themselves without becoming dependent on public assistance are unsuitable for American citizenship and therefore denied entry. Historically, public charge was determined by a holistic review of an applicant’s circumstances including age, health, financial status, education and skills. The use of public benefits for cash assistance and long-term institutionalization could be considered in this review, but other programs such as nutritional/housing assistance or public insurance were not included. In 2019, the United States Citizenship and Immigration Services (USCIS) expanded on the existing criteria to consider public benefits such as supplemental nutrition assistance, Medicaid or public housing. Additionally, it stipulated that the use of any of these public benefits for more than twelve months within any 36 month period may classify an applicant as a “public charge” effectively making them ineligible for permanent residency.

At the heart of this policy’s long-standing history is a deep-rooted belief that self-reliance is inextricably linked to the worth of an individual. It also posits that requiring public assistance is not only a burden to society, but one that is unlikely to be paid off or utilized for eventual gain.

But is this policy, and its predecessors really helping us increase self-sufficiency? Or is it robbing the US of its vast current and future population of contributing citizens? Even more pressing in 2020, is the impact of enforcing public charge during a pandemic leading to an underutilization of health care and resources only to increase morbidity and mortality across the nation?

From the lens of a healthcare worker, the general concern that efforts to rehabilitate lead to dependence baffles me. In medicine, from a sprained ankle to a surgery, achieving ultimate goals of “returning maximum function” all depend on how we can aid the healing process along the way. Generally, the use of a brace to offload the weight of a broken foot is not contested. Neither is the need for physical therapy to retrain our muscles after injury. But when it comes to rehabilitation of a person, our nation is much more skeptical of the process.

The abundance of research in the US and other countries on long-term effects of various welfare programs such as cash assistance, nutrition, and housing, point to the overwhelming benefits to the health of the recipients. Interestingly, benefits can also be seen towards community, by way of increased rates of labor participation, education attainment, employment status and productivity (Banerjee, Blattman, et. al). In a 2019 study on long-term economic impacts of childhood Medicaid, researchers found Medicaid-eligible children had higher wages starting in their twenties with wages increasing as they age. By the time these children reach age 28, their expected annual tax on earnings will return 58 cents for each Medicaid dollar spent to the government (Brown 2020). Providing basic human needs can be life changing – and it seems not just an ethical imperative, but a sound investment.

As many physicians, policy makers, immigration lawyers and researchers have feared, the changes to public charge determination is adding fear and confusion, resulting in underutilization of services available to immigrant families. Even programs such as the Children’s Health Insurance Program (CHIP), which is exempt from public charge review, have experienced a decrease in utilization.  An early impact study of public charge since enforcement began in February 2020, showed a 1% increase in the US’ noncitizen population that was associated with a 0.1% drop in child Medicaid use, estimated as a decline in coverage of 260,000 children. Researchers attribute this drop in enrollment to the fear and misinformation spreading amongst immigrants around public charge (Barofsky 2020).

As a medical student in San Diego where roughly two-thirds of our county’s population is Spanish-speaking, the impact of fear-mongering could not be more clear. Since the start of the pandemic, our once overflowing children’s hospital emergency department has been eerily quiet. Parents are worried for the safety of their families at the cost of health consequences from delays in care. At a time when access to medical care is imperative, our patients without documentation fear being turned away, or worse, turned in.

Meanwhile, disenrollment affects more than just immigrant families foregoing public assistance. Safety-net hospitals which rely heavily on Medicaid and CHIP payment are estimated to be at risk for a loss of $68 billion in health care services for Medicaid and CHIP enrollees (Raphael 2020). A drop in Medicaid enrollees will lead to increases in uncompensated care, lower Medicaid and CHIP revenue, alongside the cost of complications and emergencies secondary to foregoing early/preventive care. The fear and reluctance that public charge has created is not a simple reduction in federal spending, but rather a shifting of the burden with downstream financial havoc.

With the ample evidence that negates the assertion that the use of public assistance dooms one to a lifetime of dependency, and evidence to the contrary, that foregoing use has downstream effects on society, I urge us to rethink the dominant narrative around welfare and its implications for our nation. If we reject the belief that we must limit the use of public resources in favor of nurturing our communities most in need, we are much more likely to manifest our nation’s values of self-sufficiency and unlocking its potential. I’m not asking you to give up on self-reliance, I’m asking you to invest in it.

References:

  1. Blattman C, Jamison J, Green E, Annan J. The returns to cash and microenterprise support among the ultra-poor: a field experiment. SSRN Journal. Published online 2014.
  2.  Banerjee AV, Hanna R, Kreindler G, Olken BA. Debunking the stereotype of the lazy welfare recipient: evidence from cash transfer programs worldwide. SSRN Journal. Published online 2015.
  3. Brown DW, Kowalski AE, Lurie IZ. Long-term impacts of childhood medicaid expansions on outcomes in adulthood. Review of Economic Studies. 2020;87(2):792-821.
  4. Barofsky J, Vargas A, Rodriguez D, Barrows A. Spreading fear: the announcement of the public charge rule reduced enrollment in child safety-net programs: study examines whether the announced change to the federal public charge rule affected the share of children enrolled in medicaid, snap, and wic. Health Affairs. 2020;39(10):1752-1761.
  5. Raphael JL, Beers LS, Perrin JM, Garg A. Public charge: an expanding challenge to child health care policy. Academic Pediatrics. 2020;20(1):6-8.
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Clinical Emotion General Humour Lifestyle Literature Medical Humanities Narrative Reflection

On Playing Doctor

An excerpt from “Playing Doctor: Part Two: Residency”

By: John Lawrence, MD

As was her habit, she [the surgical chief resident] had called to check in with a surgical nurse to see how each of her patients was doing. They were discussing each patient when the nurse stopped to mention that there was a code team outside a room on the sixth floor with a collapsed patient.

My girlfriend quickly realized that it was one of her patient’s rooms, then raced back to the hospital, sprinted up six flights of stairs, and dashed onto the sixth floor, where she encountered a chaotic group of people surrounding one of her patients lying unconscious in the hallway.

The internal medicine residents and attending physician running the code were about to shock the unconscious patient because he had no pulse. As we’ve discussed previously, no pulse is bad.

Suddenly, in the middle of their efforts, and much to everybody’s surprise, the 5’1” surgery chief ran up, injected herself into their midst, ordered them to stop, and demanded a pair of scissors.

Nobody moved. The internal medicine attending exploded, wondering who the hell she was and what she was doing. It was his medicine team in charge of the code, and this patient had no pulse. Protocol was shouting for an immediate electric shock to the stalled heart.

Paying little or no attention to his barrage of questions, she grabbed a pair of scissors and now, to everyone’s complete and utter shock, cut open the patient right through the surgery wound on his abdomen.

Let me recap in case you don’t quite appreciate what’s going on: she cut open a person’s abdomen in the middle of the hospital hallway—and then stuck her hand inside the patient!

When the chairman of surgery came racing down the hall, he found his chief resident on the floor wearing a full-length skirt, with her arm deep inside an unconscious patient, asking, “Is there a pulse yet?”

The furious medical attending was shouting, “What are you doing? Are you crazy? What are you doing?”

And she kept calmly asking the nurse, over the barrage of shouts and chaos, “Do you have a pulse yet?”

Suddenly the nurse announced, “We’re getting a pulse!”

Which immediately quieted everyone.

Being an astute surgeon, she remembered thinking that the patient’s splenic artery had appeared weak when they operated on him. She correctly guessed that the weakened artery had started bleeding, and that his collapsing in the hallway was due to his rapidly losing blood internally. She had clamped the patient’s aorta against his spine with her hand to stop any further blood loss.

From the sixth-floor hallway the patient was rushed to the O.R. with my girlfriend riding on top of the gurney, pressing her hand against his aorta, keeping the guy from bleeding to death.

She then performed the surgery to complete saving his life.

The guy took a while to recover. Being deprived of blood to the brain had its detriments; when he awoke, he was convinced the 5’1” blond surgeon in the room was his daughter. When he was informed that no, she wasn’t his daughter, he apologized, “Sorry, you must be my nurse.” That comment, one she heard all too frequently, did not go over well.

To put this somewhat crazy event into perspective, within a day or two, the story became the stuff of legends told throughout surgical residencies across the country—and this was before social media sites existed to virally immortalize kitten videos.

Opening a patient in the hallway and using her hands inside the guy to save his life? This feat, treated by her as nothing more than a routine surgical moment, was akin to knocking a grand slam homerun in the ninth inning of the World Series in game seven to win the game—well, something like that. It’s what little kid wannabe surgeons would dream of if they cultivated a sense of creativity.

And to be fair, I thought it was an exciting episode, but she was always running off to save lives as a surgeon. The moment however, that finally put this accomplishment into perspective for me occurred when I was having dinner with her brother, the ace of aces surgeon, along with several other all-star surgical resident friends. This was a few weeks later, and without her present.

Eventually their surgery discussions (because that is pretty much all that this group of surgeons discuss when stuck together: surgery, ultra-marathon running, and more surgery) turned to loudly bantering back and forth about the whole event.

They boisterously argued about how much better they would have handled the whole situation, and wished they had been there to save the day instead of her:

“You dream of something like that going down.”

“Can you imagine being that lucky?”

“Should have been me.”

“Oh man, I would pay to have something like that happen.”

All the young surgeons agreed that this was their medical wet dream, being the rebellious action hero, on center stage, in such a grand case, in the middle of the hospital, no less, calmly saving a life in front of everyone with attending physicians yelling at you.

Then there was a moment of silence, total quiet as everyone reflected on the event…

“But you know what?” her brother finally said, looking around at everyone, then shaking his head and chuckling, “I never would have had the balls to do it.”

And every single surgeon around the table slowly nodded their head in agreement—they wouldn’t have either.

True hero.

Playing Doctor: Part Two: Residency is a medical memoir full of laugh-out-loud tales, born from chaotic, disjointed, and frightening nights on hospital wards during John Lawrence’s medical training and time as a junior doctor. Equal parts heartfelt, self-deprecating humor, and irreverent storytelling, John takes us along for the ride as he tracks his transformation from uncertain, head injured, liberal-arts student to intern, resident and then medical doctor.

Categories
Clinical General Healthcare Costs Innovation Quality Improvement Technology

Let Me Be Brief: Principles of Value-Based Health Care

A series of briefs by Texas Medical Students

By: Sanjana Reddy, Tsola Efejuku, and Courtney Holbrook

In the seminal 2006 text, Redefining Health Care, Harvard Business School professors Michael Porter and Elizabeth Teisberg describe a healthcare market with a “positive sum” game; a market where all professional and economic incentives are aligned towards the maximization of “value,” defined as the “the quality of patient outcomes relative to the dollars expended.”1 Value in health care is the measured improvement in a patient’s health outcomes for the cost of achieving that improvement.1 Value-based care transformation is often conflated with cost reduction methods, quality improvement, or even evidence-based care guidelines. Rather, the goal of value-based care is to enable healthcare systems to improve health outcomes for patients over the full cycle of care. Tiesberg further elucidates three key dimensions (the Triple C’s) for measuring patient outcomes: capability (the ability for patients to do what is important to them), comfort (relief from emotional and physical suffering), and calm (reducing the chaos of navigating the healthcare ecosystem).2

In the U.S., improving patient-centered outcomes has become a highly discussed topic with ABIM’s Choosing Wisely program3, American College of Physicians’ High Value Care initiative4, and even major publications like the American Journal of Medicine’s recurring column on high-value care practice.5 In response to escalating healthcare costs, the Centers for Medicare & Medicaid Services (CMS) and other payers have shifted from traditional fee-for-service payments to value-based reimbursements such as the CMS Merit-Based Incentive Payment System (MIPS).6 Value-based health care empowers the clinician-patient relationship, places care delivery decisions at the expertise of a coordinated clinical team, and focuses on outcomes that matter most to patients.

The leadership of professional organizations, such as the Texas Medical Association (TMA), is invaluable to the process of defining and upholding the principles of value-based health care for systems and individual practitioners. Current TMA policy recognizes the need to advocate for high-value care principles in undergraduate and graduate medical education (Res. 201-A-18)7 and the adoption of the Choosing Wisely campaign (265.023).8 Although the evidence-based model (265.018.)9 previously adopted by the TMA does not encompass the full principles of the value-based decision making model, TMA resolutions on Cost Effectiveness (110.002)10 and Cost Containment (110.007)11 reinforce the need for cost-effective utilization of care.

On the federal level, exceptions to key legislation have been enforced recently to further advocate for value-based healthcare options. In November 2020, the CMS and Department of Health and Human Services Office of the Inspector General (OIG) released new exceptions to the Anti-Kickback Statute and the Stark law, effective January 19, 2021. These exceptions now allow more providers to participate in coordinated and value-based care arrangements that can improve quality and outcomes, lower costs, and increase health system efficiency, without the fear of severe criminal or civil legal backlash.12

The practice of value-based health care, although strong in theory, is not without flaws. The primary weakness of this system is that physicians are often responsible for things out of their control, such as referred providers’ costs and pre-existing conditions.13 This system requires widespread buy-in from all providers in order to collectively reduce costs and increase quality of care—effectively changing the culture of health care. Notably, this system inherently disincentivizes caring for patients of low socioeconomic status, particularly minorities, who inevitably generate higher costs due to health disparities.14 Weinick et al. emphasize adding a metric to the value-based healthcare system that addresses equity in health care. Their guide illustrates how to utilize value-based health care to reduce racial disparities, primarily by appending equity in pay-for-performance models.15

Goals of the Medical Student Section include staying informed about current policies regarding value-based health care since these policies are constantly changing and significantly affect reimbursement rates. Medical students are afforded the opportunity to learn about the principles of value-based health care from the very beginning of their training. Knowing the alphabet soup of value-based care (MIPS, APM, MACRA, etc.) will benefit patients and providers alike by improving outcomes, reducing costs, and maximizing reimbursements. In an effort to emphasize value-based health care early in the practice of medicine, the American Board of Internal Medicine sanctioned the Dell Medical School Value Institute for Health & Care’s STARS (Students and Trainees Advocating for Resource Stewardship) program. Over the past few years, student representatives across the country have met to learn about the principles of high-value care, review the Choosing Wisely campaign, and start their own initiatives at their respective medical schools. In Texas, students at UTHSC San Antonio’s Long School of Medicine created an ongoing Value-Based Health Care elective and degree distinction pathway. Dell Medical School offers online instructional modules and is a leader in patient-centered outcomes research. Medical students have a tremendous opportunity to impact high-value care through education, research, and student-led initiatives.

References:

  1. Porter ME, Teisberg EO. Redefining Health Care: Creating Value-Based Competition on Results. 2006. Boston, MA: Harvard Business School Press.
  2. Liu TC, Bozic KJ, Teisberg EO. “Value-based healthcare: person-centered measurement: focusing on the three C’s.” Clin Orthop Relat Res. 2017;475:315–317.
  3. https://www.choosingwisely.org/
  4. https://www.acponline.org/clinical-information/high-value-care
  5. https://amjmed.org/advancing-high-value-health-care-a-new-ajm-column-dedicated-to-cost-conscious-care-quality-improvement/
  6. https://www.cms.gov/newsroom/fact-sheets/quality-payment-program
  7. Texas Medical Association. Policy Compendium. Evidence-Based Medicine 265.018.
  8. Ibid. High-Value Care in Undergraduate and Graduate Medical Education 200.054.
  9. Ibid. Choosing Wisely Campaign 265.023.
  10. Ibid. Cost Effectiveness 110.002.
  11. Ibid. Cost Containment 110.007. 
  12. Modernizing and Clarifying the Physician Self-Referral Regulations Final Rule (CMS-1720-F). CMS. Accessed May 27, 2021. https://www.cms.gov/newsroom/fact-sheets/modernizing-and-clarifying-physician-self-referral-regulations-final-rule-cms-1720-f.
  13. Burns, J. “What’s the downside to value-based purchasing and pay for performance?” Association of Health Care Journalists. September 6, 2014. https://healthjournalism.org/blog/2014/09/whats-the-downside-to-value-based-purchasing-and-pay-for-performance/.
  14. “Value-Based Health Care Must Value Black Lives,” Health Affairs Blog, September 3, 2020. DOI: 10.1377/hblog20200831.419320
  15. Weinick, Robin & Rafton, Sarah & Msw, & Walton, Jim & Do, & Hasnain-Wynia, Moderator & Flaherty, Katherine & Scd,. (2021). Creating Equity Reports: A Guide for Hospitals.
Categories
Clinical Community Service Emotion Empathy General Healthcare Disparities Opinion Public Health

Let Me Be Brief: Community Leadership

A series of briefs by Texas Medical Students

By: Fareen Momin, Sereena Jivraj, and Melissa Huddleston

In the ever-evolving field of medicine, it is no surprise that the idea of leadership in medicine has changed over the years. Some physicians have engaged in additional leadership in the context of politics. In fact, several physicians signed the Declaration of Independence.1 Today, physician community leadership extends much further. Physicians can engage with their communities and beyond via virtual platforms. Physician “influencers” use social media to provide quick answers to patients, and physician-patient interactions on Twitter alone have increased 93% since the onset of the COVID-19 pandemic.2 With physician voices reaching ever-larger audiences, we must consider the benefits and ramifications of expanding our roles as community leaders.

Medicine and politics, once considered incompatible, are now connected.3 There is a long list of physician-politicians, and community members often encourage physicians to run for political office, as in the case of surgeon and former representative Tom Price.4 Physicians are distinctly equipped to provide insight and serve as advocates for their communities.5 Seeking to leverage this position, a political action committee (PAC), Doctors in Politics, has an ambitious desire to send 50 physicians to Congress in 2022, so they can advocate for security of coverage and freedom for patients to choose their doctor.6-7 There are dangers, however, when physicians take on this additional leadership role. For example, Senator Rand Paul (R-Ky.), an ophthalmologist, has spread medical misinformation, telling those who have had COVID-19 to “throw away their masks, go to restaurants, and live again because these people are now immune.”8

It is not practical for even those medical students who meet age requirements to run for office. What we can do is use our collective voice to hold our leaders accountable, especially when they represent our profession. We can create petitions to censure physicians who have caused harm and can serve as whistleblowers when we find evidence of wrong-doing perpetrated by healthcare professionals. We can also start engaging in patient advocacy and policy-shaping with the American Medical Association (AMA) Medical Student Section and professional organizations related to our specialty interest(s).

To avoid adding to confusion, statements by physicians should always be grounded in evidence. Dr. Fauci’s leadership is exemplary in this regard. He has worked alongside seven presidents, led the National Institute of Allergy and Infectious Diseases (NIAID) since 1984, and has become a well-known figure due to his role in guiding the nation with evidence-based research concerning the COVID-19 pandemic.9 Similarly, Dr. John Whyte, CMO for WebMD, has collaborated with the Food and Drug Administration (FDA) to advocate for safe use of medication and to educate those with vaccine apprehension.10 Following these examples, we should strive to collaborate with public health leaders and other healthcare practitioners and to advance health, wellness, and social outcomes and, in this way, have a lasting impact as leaders in the community.

  1. Goldstein Strong Medicine: Doctors Who Signed the Declaration of Independence. Cunningham Group. Published July 7, 2008. Accessed February 2, 2021. https://www.cunninghamgroupins.com/strong-medicine-doctors-who-signed-the-declaration-of-independence/
  2. Patient Engagement with Physicians on Twitter Doubles During BusinessWire. Published December 17, 2020. Accessed February 2, 2021. https://www.businesswire.com/news/home/20201217005306/en/Patient-Engagement-with-Physicians-on-Twitter- Doubles-During-Pandemic
  3. WHALEN THE DOCTOR AS A POLITICIAN. JAMA. 1899;XXXII(14):756–759. doi:10.1001/jama.1899.92450410016002d
  4. Stanley From Physician to Legislator: The Long History of Doctors in Politics. The Rotation. Published May 15, Accessed February 2, 2021. https://the-rotation.com/from-physician-to-legislator-the-long-history-of-doctors-in-politics/
  5. Carsen S, Xia The physician as leader. Mcgill J Med. 2006;9(1):1-2.
  6. Doctors in Politics Launches Ambitious Effort to Send 50 Physicians to Congress In 2022. BusinessWire. Published May 27, 2020. Accessed February 2, 2021. https://www.businesswire.com/news/home/20200527005230/en/Doctors-in-Politics-Launches-Ambitious-Effort-to- Send-50-Physicians-to-Congress-In-2022
  7. Doctors in Accessed February 2, 2021. https://doctorsinpolitics.org/whoweare
  8. Gstalter Rand Paul says COVID-19 survivors should “throw away their masks, go to restaurants, live again.” TheHill. Published November 13, 2020. Accessed February 2, 2021. https://thehill.com/homenews/senate/525819-rand-paul-says-covid-19-survivors-should-throw-away-their-masks-go-to
  9. Anthony Fauci, M.D. | NIH: National Institute of Allergy and Infectious Diseases. Published January 20, 2021. Accessed February 2, 2021. https://www.niaid.nih.gov/about/anthony-s-fauci-md-bio
  10. Parks Physicians in government: The FDA and public health. American Medical Association. Published June 29, 2016. Accessed February 2, 2021. https://www.ama-assn.org/residents-students/transition-practice/physicians-government-fda-and-public-health
Categories
Clinical General Healthcare Cost Healthcare Costs Healthcare Disparities Innovation Patient-Centered Care Primary Care Quality Improvement

Let Me Be Brief: Medicaid Expansion

A series of briefs by the Texas Medical Students

By: Ammie Rupani and Alwyn Mathew

In 2019, 18% of Texans had no form of health insurance.1 650,000 Texans have lost their health insurance due to unemployment during the pandemic. The rate of uninsured Texans is staggering and has only been worsened by the pandemic. During this critical time, we must talk about Medicaid Expansion and the potential solutions for millions of people with no health insurance. As a medical student, I have seen patients defer life-saving medications such as insulin in order to afford rent or groceries. Consequently, these choices have brought such people to the Emergency Room in diabetic ketoacidosis, which could have been easily avoided with regular insulin treatments. Stories like this are far too common in Texas, and it is important to recognize such outcomes are easily preventable with improved access to health insurance coverage. How can we as students learn to treat people, when the system we are bound to  practice in is perpetuating their very diseases?

Retrieved from Texas Comptroller

Medicaid is a health insurance program managed through the Federal Centers for Medicare and Medicaid Services (CMS). Medicaid is currently jointly funded by the Federal and State governments with the Federal government matching each dollar the State spends. Texas Medicaid is primarily a fee-for-service model that has poor reimbursement rates and high administrative burden that discourages physicians from accepting Medicaid in their practice. Currently, Texas Medicaid coverage is only offered to children, pregnant women, seniors, and people with severe disabilities, who also fall below a certain income threshold. For example, a single mother making minimum wage at her  full-time job is not eligible for Medicaid because she earns too much. However, she does not qualify for Federal subsidies covering some of the insurance cost because she does not earn enough. The Patient Protection and Affordable Care Act of 2010 would help address this woman’s dilemma since Medicaid Expansion would cover all individuals with incomes up to 138 percent of the Federal Poverty Level, amounting to $16,643 for individuals and $33,948 for a family of four. Medicaid Expansion would provide a health insurance option to an estimated 2.2 million uninsured low-wage Texas adults.2

Although the original arguments against Medicaid Expansion in Texas focused on States’ rights and limiting Federal dependence on funding, the primary opposition to this program was the Federal mandate. In 2012, the US Supreme Court ruled that the Federal government could not mandate the Expansion of Medicaid in any State, leading to Texas and several States opting out of the program. Realizing the benefits and improvement in health outcomes, several States have since adopted the Expansion program offered through CMS, including Arkansas (2014) and Louisiana (2016). Currently, Texas spends nearly $40 billion (State and Federal funds) for the Medicaid program, with a 60-40% distribution between the Federal and State Government respectively.3 Expansion would be fiscally sound for Texas as it will reduce the strain on our State budget and draw in more Federal resources. Looking past the dollar amount, it is crucial that medical students and other healthcare professionals recognize the benefits of improved access and early medical intervention that can be achieved through Medicaid Expansion.3

TMA’s Legislative Recommendations4
  • Develop a meaningful, statewide health care coverage initiative using federal dollars to:
    • Extend meaningful coverage to low-income uninsured working-age adults, and
    • Establish a state-administered reinsurance program to reduce premiums for people enrolled in marketplace
  • Provide 12-months’ comprehensive coverage for women who lose Medicaid 60 days
  • Establish 12-months’ continuous coverage for children enrolled in Medicaid, the same benefit given to children enrolled in the Children’s Health Insurance Program.
  1. Accounts TCof P. Uninsured Texans. Retrieved from- https://comptroller.texas.gov/economy/fiscal-notes/2020/oct/uninsured.php
  2. How Many Uninsured Adults Could Be Reached If All States Expanded Medicaid? – Tables. KFF. https://kff.org/report-section/how-many-uninsured-adults-could-be-reached-if-all-states-expanded-medic aid-tables/. Published June 25, 2020.
  3. Federal and State share of Medicaid Spending, 2019, Kaiser Family Foundation- retrieved from – https://kff.org/medicaid/state-indicator/federalstate-share-of-spending/?dataView=1&currentTimeframe=0 &sortModel=%7B%22colId%22:%22State%22,%22sort%22:%22desc%22%7D
  4. Provide Meaningful Health Care Coverage for Uninsured Texans. Texmed. https://texmed.org/Template.aspx?id=55300.
  5. Status of state medicaid expansion decisions: Interactive Map, 2021. Retrieved from- https://kff.org/medicaid/issue-brief/status-of-state-medicaid-expansion-decisions-interactive-map/
Categories
Clinical General Law Public Health

Let Me Be Brief: Politics in Medicine

A series of briefs by the Texas Medical Students

By: Shubhang Bhalla, Chelsea Nguyen, and Alejandro Joglar

There are only two possible scenarios: either the Mayans were inept seers, or they ran out of stone. In any case, the predicted end of the world missed its appointment by exactly eight years. With nearly three million deaths globally, COVID-19 has quickly assumed its standing as one of the leading communicable causes of mortality.1 Despite the novel therapeutics to combat the pandemic, recent scientific models and  health information now report that masks could have prevented nearly 12% of mortality associated with SARS-CoV-2.2 Surprisingly, this simple piece of personal protective equipment has become politicized, with some opponents claiming that masks are an infringement on human liberty. In the current sociopolitical climate, we are amid two pandemics: one of SARS-CoV-2 and another of misinformation—both equally harmful. Much like the historical precedent set in 1918 with the formation of     the Anti-Mask League, public health leaders of the twenty-first century must face the challenge of juggling objective science, pandering politics, and devastation left in the wake of the SARS-CoV-2 pandemic.

Public health has been consistently linked to leading political efforts of the time. From the development of environmental regulations, seatbelt laws, and smoking zones, to the contentious debate over mandatory vaccinations, efforts to improve public health sometimes impinge on various political ideologies and interests.3 Often, these debates can be broken down to the fundamental balance of individual autonomy and communal benefits. This intricate relationship between public health and politics has become increasingly strained during the current pandemic. Many critics of the pandemic response argue that by “flattening the curve,” individual autonomy has been infringed upon. Undoubtedly, the pandemic has catalyzed the transformation of established social operations: business closures, online education, and disruptive daily living. However, among what some call “liberty-depriving” mandates, the mandatory mask  usage remains a significantly contentious proposal. Wearing a mask serves to fulfill two broader, complementary goals: individual responsibility and adherence to a common, public paradigm to eradicate the pandemic. Despite its complementary nature, the wearing of masks has become a catalyst for political conflict, becoming a form of divisive political symbolism for the American public.

Today, only twenty-five states currently mandate face masks in public;4 however, as restrictions begin to  lift due to mounting public pressure, it is critical to understand that the origins of the mask resistance is the consequence of inconsistent scientific recommendations, actions of political figures, and America’s long-standing principle of liberty. The argument of wearing masks is simple: viruses are transmitted via droplets, and properly constructed masks can prevent the spread of infected droplets. According to the CDC, this is called “source control.”1 However, the delivery of this message has been muddled. In April, the World Health Organization (WHO) instructed the public not to use masks, while the CDC recommended the opposite. In June, the WHO adjusted its guidance to state that the public should wear nonmedical masks only in specific instances of high risk of infectivity. However, the CDC director touted universal mask wearing as “one of the most powerful weapons” to curb the rates of COVID-19.5 The net  result of conflicting recommendations was a divided population who sought concrete guidance from political figures.

Yet, political figures further allowed for festering sentiments against masks to transform into a symbolic ideology. Initially, the conflict arose with protest against government mandates, cited by some as “extensive governmental reach into individual action,” but as the debates shifted towards masks, a new conflict—one of the “culture war”—reigned.6 In this battle, masks were described as “muzzles . . . restricting His [God’s] respiration mechanism.”6 As these views gained popularity, politicians’ action indirectly supported these protests. Top officials, such as Donald Trump and Mike Pence, sought to erroneously show strength by limiting mask usage or outright denying the need for the equipment. In Montana on September 14, 2020, former Vice President Mike Pence stood in front of a large crowd to support the state’s Republicans. However, many individuals who attended the event, including Mike Pence, were not wearing a mask despite a mask order that was in effect for the surrounding county.7 Furthermore, at the national level, Congress denied passing the Masks for All Act of 2020, an initiative to provide high-quality masks for all individuals.8 Contradictions between the scientific community, state policy, and actions of key figures downplayed the severity of the virus, influenced public’s perception, and shifted support towards the anti-mask masses.

As of May 19th, approximately 125.5 million people in the United States have been fully vaccinated, either  by the two-dose series by Pfizer and Moderna or Johnson & Johnson’s single-dose vaccine.9 Per the CDC, it is predicted that 90% of the total US population will be vaccinated by July 12th.9 Despite this incredible progress, it is still important to continue following mask-wearing protocols as new research is being developed about effectiveness of the vaccine. For example, it is still unknown whether fully vaccinated individuals can transmit COVID-19 to unvaccinated individuals.10 Additionally, the rise of new variants of COVID-19 may influence the effectiveness of vaccines and the spread of COVID-19 among susceptible individuals. The uncertainty surrounding the vaccines and COVID-19 means it is essential to continue following public health mandates, including mask wearing if unvaccinated, social distancing, and following travel and local guidelines regardless of vaccination status. Dr. Anthony Fauci even mentioned during an interview with CNN that it is “possible” that Americans will be wearing masks in 2022.11

As medical students, we can play an important role by engaging with and educating our communities about the most effective methods of maintaining safety during the pandemic. It is important that we talk with our friends and family about why unvaccinated individuals should continue to wear a mask and follow certain precautions and remaining guidelines (ex: wearing masks on public transport) as well as recommending trusted resources for more information, such as the CDC. As new research develops and guidelines change, being a clear and comprehensive line of communication between science and the public is more important than ever before.

  1. Infection Control: Severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) | CDC. Centers Dis Control Prev. Published online 2020:1-4. Accessed May 9, 2021. https://www.cdc.gov/coronavirus/2019-ncov/hcp/infection-control-recommendations.html
  2. Matuschek C, Moll F, Fangerau H, et Face masks: Benefits and risks during the COVID-19 crisis. Eur J Med Res. 2020;25(1). doi:10.1186/s40001-020-00430-5
  3. Bekker MPM, Greer SL, Azzopardi-Muscat N, McKee M. Public health and politics: How political science can help us move forward. Eur J Public Health. 2018;28(suppl_3):1-2. doi:10.1093/eurpub/cky194
  4. Markowitz Does Your State Have a Mask Mandate Due to Coronavirus? AARP. Published 2021. Accessed May 9, 2021. https://www.aarp.org/health/healthy-living/info-2020/states-mask-mandates-coronavirus.ht ml
  5. CDC and WHO offer conflicting advice on masks. An expert tells us why. Accessed May 9, 2021. https://abcnews.go.com/Health/cdc-offer-conflicting-advice-masks-expert-tells-us/story?id= 70958380
  6. Dyson, (2020). Are they masks or muzzles? Two discussions highlight different opinions | Latest News | starexponent.com. Free Lance Star. https://starexponent.com/news/are-they-masks-or-muzzles
  7. The Mask Hypocrisy: How COVID Memos Contradict the White House’s Public Face | Kaiser Health Accessed May 9, 2021. https://khn.org/news/mask-wearing-hypocrisy-how-covid-white-house-memos-contradict-ad ministration-coronavirus-defense-policy/
  8. Masks for All Act of 2020 (2020; 116th Congress S. 4339) – GovTrack.us. Accessed May 9, https://www.govtrack.us/congress/bills/116/s4339
  9. Covid-19 Vaccinations: County and State Tracker – The New York Times. Accessed May 9, https://www.nytimes.com/interactive/2020/us/covid-19-vaccine-doses.html
  10. Center for Disease Control and Prevention. CDC Issues First Set of Guidelines on How Fully Vaccinated People Can Visit Safely with Others. Accessed May 9, 2021. https://www.cdc.gov/media/releases/2021/p0308-vaccinated-guidelines.html
  11. Fauci: “Possible” Americans will be wearing masks in 2022 to protect against Covid-19 – Accessed May 9, 2021.
Categories
Clinical General Public Health

Let Me Be Brief: Vaccine Hesitancy

A series of briefs by the Texas Medical Students

By: Grayson Jackson, Kate Holder, and Whitney Stuard

Vaccine hesitancy refers to when an individual refuses or delays receiving an available vaccine, primarily due to misinformation, lack of health literacy, or fear.1 This issue—especially in the setting of the COVID-19 crisis and growing misinformation about science and medicine nationwide—is of great importance for medical students as future physicians and scientific communicators. Widespread vaccine refusal may result in untold public health consequences, including outbreaks of vaccine-preventable infectious diseases and rising healthcare costs. Vaccine hesitancy is often observed by quantifying nonmedical vaccine exemptions from state-mandated immunizations. In Texas, these exemptions have tripled since the 2010–11 school year.2 Data compiled by the Centers for Disease Control show that during the 2018–19 school year (the most recent available), Texas reported 2.2% of kindergarteners with a nonmedical exemption, amounting to 390,000 exempted children second only to California.3

The ongoing health crisis caused by COVID-19 has placed tremendous hope on vaccine compliance as the most practical way to stifle the global pandemic. Scientific facts have become increasingly politicized, and vaccines represent one of the key topics in which such facts have become distorted and polarized. Some questions (i.e., whether vaccines cause autism) have persistently circulated among vaccine-hesitant groups for years, whereas the COVID-19 crisis has heightened the risk of disinformation as vaccines by Pfizer, Moderna, and others are rolled out nationwide. It is incumbent upon us as future physicians to engage in the responsible dissemination of correct information about vaccines’ safety and efficacy. However, one should also avoid rushing to condemnation or judgment of vaccine-hesitant patients and parents which may only intensify their opposition.4

The Texas Medical Association (TMA) has worked to actively combat vaccine hesitancy and problems with vaccine availability throughout the state. The TMA has been working to support vaccinations including influenza, HPV, MMR and others throughout its history. TMA’s current vaccine advocacy agenda is still working to advocate for flu shots during the ongoing COVID-19 pandemic. The TMA Medical Student Section (MSS) has also continually supported vaccine availability to all Texas residents and promoted Be Wise Immunize chapters throughout the medical school within the state. In addition to TMA’s Be Wise Immunize program, TMA has published a variety of policies supporting vaccinations to increase overall vaccination rates. Policy such as 135.012 Immunization Rates in Texas, 260.072 Conscientious Objection to Immunizations, and 135.022 Adolescent Parent Immunizations all work to increase vaccination rates within the state, promote the Texas Vaccines for Children Program and the Adult Safety Net Program, as well as combat vaccine hesitancy. In addition, during the COVID-19 pandemic TMA has encouraged the #ThisIsOurShot campaign to combat vaccine hesitancy.

The TMA Medical Student Section supports widespread vaccine availability in a prompt and timely manner to all Texas residents. The MSS supports incorporation of the COVID-19 vaccine into the mandatory vaccine category once it is federally authorized beyond emergency use. This may become increasingly important as we see young people and college students, who deny the vaccine due to not fearing the less negative COVID-19 health outcomes, become the population disproportionately responsible for COVID-19 spread.

As a medical student, you have probably heard countless friends and family members discuss their hesitancy to receive the COVID-19 vaccine. Many people have vehemently opposed the COVID-19 vaccination simply because they have fallen victim to false information. As medical students and advocates, we should commit to broadcasting truth and combating misinformation in our local communities. We have the wherewithal and the voice to endorse the COVID-19 vaccine.

1 MacDonald NE; SAGE Working Group on Vaccine Hesitancy. Vaccine hesitancy: Definition, scope and determinants. Vaccine. 2015;33(34):4161-4164. doi:10.1016/j.vaccine.2015.04.036

2 https://www.texmed.org/Template.aspx?id=55299#_ftnref1

3 https://www.cdc.gov/vaccines/imz-managers/coverage/schoolvaxview/data-reports/exemptions-reports/2018-19.html

4 Please visit https://www.ama-assn.org/delivering-care/public-health/3-ways-physicians-can-improve-vaccine-conversation.

Fast Facts

  • The COVID-19 vaccine cannot give you the coronavirus or make you test positive for the coronavirus.
  • Even if you have already recovered from COVID-19, you should receive the vaccine to prevent reinfection.
  • The COVID-19 vaccine will not alter your DNA or impair your ability to have children.
  • The COVID-19 vaccine is demonstrably safe and effective and tested through rigorous clinical trials.
Categories
Clinical General Healthcare Costs Law Opinion Patient-Centered Care Primary Care Public Health Reflection

Discontinuity in Care

My resident tries fairly hard to take care of his patients. When he is with them, I catch him paying attention to all sorts of details that he could have easily let slip past. So it made it all the more difficult when I saw him enraged. When he opened up his list of clinic appointments one morning, on the list was a patient he did not want to see. It was not just that she was a new patient to him. It was not just that her problem list went on like a run-on sentence. It was that both were true, and my resident was still expected to see her in only 15 minutes.

While chart reviewing, he learned that the only consistency in this patient’s medical care at our clinic had been a history of inconsistent providers—and based on their notes, none of them had the complete story. “Why am I even seeing her?!” my resident asked rhetorically, as he frantically searched for answers he knew he did not have the time to find. I wondered, too. This visit seemed to benefit no one except the Billing Department, and even that would depend on whether the Medicare reimbursements actually made it through.

That patient’s experience was hardly unique, though. While rotating through various specialties as a medical student, I have met several patients who were passed from one provider to another. Maybe the provider had to switch services. Maybe they left the institution for better opportunities elsewhere. The reasons were myriad. Stories like those suggest that continuity of care may still only be a priority in primary care literature.

I think one reason for this reality is a lack of incentives to keep doctors and patients together. In any field, including medicine, we see money driving people’s attention and vice versa. Since our country has historically kept primary care on the back burner, there is little evidence to believe that practical incentives for continuity of care will spontaneously appear in the near future.

So, for the primary care fans out there, it might be worth it to start speaking up.

 

Photo credit: Norbert von der Groeben/Stanford School of Medicine, posted by National Center for Advancing Translational Sciences

Categories
Clinical Patient-Centered Care Reflection

“Listen to understand” not “listen to reply”

A two-month stint at the oncology department in a Singapore government hospital has provided me with vivid examples of the importance of doctor-patient relationships and communication. Cancer, in many societies, is still widely regarded as medical taboo – a condition people closely associate with death. While I got to witness very sensitive and depressing conversations in relation to end-of-life care, the most impactful conversation I experienced had nothing to do with end-of-life care. Rather, it was a complaint from a patient about his team of allegedly negligent doctors.

It took place in a private ward room with just Mr. C and his wife. When I first entered the room, Mr. C gave me a hostile look and asked me who I was. Feeling awkward given the cold welcome, I persisted to introduce myself as a medical student who wanted to take his history. Although reluctant, he agreed to talk to me. What started as a cold introduction turned out to be an hour-long avenue for Mr. C to vent his anger and frustrations. It became etched in my mind for the important lesson that came with it.

I understood from Mr. C that it was not the diagnosis that brought about his unhappiness, but how the diagnosis came about.  Mr. C presented with a 6-month history of progressive dull epigastric pain and loss of weight with no co-morbidities. He had no associated fevers, nausea or vomiting. The conversation went well until I asked him the question, “Did you bring this to your doctor’s attention?”

Immediately, there was a change in his facial expression. I divined from his grim expression that the news was not good. He started shaking his head, somewhat in disappointment. His wife started tearing. I had inadvertently asked a sensitive question and was caught helplessly in that moment of grief and sorrow.

Mr. C then explained that he actually went to the Emergency Department (ED) thrice as his abdominal pain worsened. Unfortunately, on the first two occasions, they sent him home after establishing that his vitals were stable with no abnormalities in his test results. He was sent home with a stack of medications but without a diagnosis.

Interestingly, Mr. C actually suspected himself that he had gastric cancer given his strong family history; he expected that he would suffer from it one day. The doctors shook it off despite his persuasion. On the third visit, however, the doctors finally admitted him and performed an endoscopy. It was later confirmed to be Stage 3 gastric cancer. It was at this point in the conversation when emotions started running wild.

The atmosphere heated up. I was shot with questions and complaints by both Mr. C and his wife.

“I would not have been denied earlier detection and treatment if doctors listened to my history,” Mr. C said.

“That period of 6 months could have made a huge difference to his disease stage and prognosis!” Mr. C’s wife added.

“Do you think the doctors have done the right thing for me?” he asked.

“Doctors never bother to hear patients out!” he shouted.

It felt as if the blame was on me, and I felt angry for a moment. I was on the edge of questioning his accusations, and refuting his comments. I was conflicted inside. On the one hand, the manner in which he was treated at the ED seemed unjustified. But at the same time it did not seem fair for me to blame the doctors without understanding what their line of thought was.

I further understood that Mr. C had explained his case to a senior consultant, who was also the surgeon who performed his gastrectomy. The surgeon brushed Mr. C off, and told him rudely to switch to another hospital if he did not like it here. It was at this point that I stood in favor of Mr. C. I actually could not believe such an insolent comment would come from the mouth of a senior doctor, whom I thought was supposed to possess the maturity and authority to handle such a complex matter.

Mr. C and his wife were evidently distraught with how the diagnosis came about, compounded by the fact that he was still relatively young to suffer from stage 3 gastric cancer. He explained that gastric cancer is one of the most aggressive and treatment-resistant cancers with the highest mortality rate, as evident from the young deaths of his family members who succumbed to the illness. My heart immediately sank after coming to terms with his bleak prognosis.  I recalled what was taught in my clinical skills classes, and took on an empathetic coat to try and calm them down. I felt an ephemeral sense of shame for the apparent lack of professionalism Mr. C’s doctors had displayed. Furthermore, I was sunk in guilt for initially doubting his comments.

I continued with the rest of the history and thanked Mr. C and his wife for their time. I walked out of the room and told them, “Thank you for sharing with me. Both of you have taught me about the kind of doctor whom I do not want to emulate in the future”.

It was an eventful hospital experience for Mr. C, and a rather eventful conversation for me with him and his wife. Despite the awkwardness and negative emotions, it taught me a great deal about the nature of difficult situations, the qualities a doctor should possess, and the importance of communication.

It was no doubt a challenging conversation. It was unlike all the other conversations I have had with patients, that were full of praise for their doctors, which always reassured me of my choice to become one.  My limited exposure to issues that arise from the lack of proper doctor-patient communication caught me off guard during this particular conversation.

When I mentioned to Mr. C that I was a medical student, his facial expression and body language conveyed his bitterness and dissatisfaction. It was almost as if he had something against me. I was filled with self-doubt and hesitancy. I was unsure if I should persist with the conversation given his hostile appearance but I knew that he had a story that he was dying to tell. Mr. C’s experience at the ED has probably altered his perception of doctors, and it was worth it to hear him out.

In hindsight, I am consoled by the fact that I had that conversation with Mr. C because he gradually opened up to me, treated me as an avenue to vent his frustrations, and perhaps subconsciously, taught me a lesson or two about being a doctor. I have learned that patients are always keen for a listening ear, be it to share their joy, or to pour their sorrows. It is hence important for medical students like me to not be doubtful when approaching patients for the fear of intruding in their privacy or taking up their needful rest time. Never be afraid that you are just an unqualified medical student.

Communication is the crux of medicine. As Sir William Osler said, “The good physician treats the disease; the great physician treats the patient who has the disease.” History-taking is not just about the whims and fancies of signs, symptoms, investigations, and differentials. It is in fact a conversation, an opportunity to build rapport and trust with the patient. We are not community health surveyors ticking off boxes in our questionnaire; we are there to hear our patients out by expressing their problems and concerns. There is no better opportunity than in medical school, where you are not confined by the “rush hour” situation in hospitals, to hone these human skills.

Fortunately, patients tend to given you their trust, and willingly share their most personal information with you. This has shown me the power imbalance of the doctor-patient relationship, which arguably has been exploited in Mr. C’s case – i.e. doctors sometimes do not give patients enough attention.

Another issue that I struggled with was handling the complaints that were hurled my way. My lack of maturity was evident from my agitation, and the urge I had to refute Mr. C. Deep down, I was conflicted and defensive. Mr. C’s story contradicted my own impression that all doctors do their best for patients. It felt as if I was taking the blame on behalf of all doctors. However, I decided to stay quiet about it. I learnt that doctors aren’t  “super-humans” who will never make mistakes. It was only when I started consolidating my thoughts and weighing out the situation that I was eventually convinced that Mr. C’s care was indeed compromised by the negligence of his various doctors.

Admittedly, I handled the situation rather poorly. I reckon it was largely due to lack of exposure to such situations, especially given the sheltered, cozy environment we enjoy in medical school. Clinical interactions are based around simulated patients who, more often than not, have simple presentations that are short enough for us to take a history and perform a physical examination. Everything is staged for us to learn in a protected environment. Even in hospitals, the patients we see are recommended by interns as “cooperative enough” for us to take a history.

Medical students should be taught how to deal with complicated cases through the use of simulated patients. When I say complicated, I mean in a psychosocial sense rather than in a medical sense. The skills needed to deal with these situations are those that cannot be taught through textbooks, but through practice. These are human skills; skills that define the art of medicine. These non-scientific skills may not be as interesting as pathology, physiology or anatomy, but are equally, if not more important than the scientific aspects that students are often keener about.

Students are often enthusiastic to ask senior doctors about the scientific aspects of a patient’s presentation. Similarly, they should not be shy to ask them about approaches they should adopt when such situations arise. I am inclined to believe that most students underestimate the importance of communication, which often takes a backseat in their learning priorities.

Medical schools can no longer assume that their students are equipped with the necessary communication and social skills from just clinical skills examinations, which are often not representative of an actual hospital setting. Rather, explicit emphasis on the mastery of such complicated yet common social presentations, should be made an integral part of the curriculum.

I have learned the importance of giving patients the space to talk. For example, in my encounter, I was close to interrupting Mr. C when he was complaining about his experience. Having done so, however, would have prevented me from comprehending the entire situation in context. As medical students, we need to appreciate the difference between “listening to reply” and “listening to understand”. Practice the latter, not the former. Never be too quick to cut off your patients halfway through, and jump to conclusions. Let them tell their whole story, and you will be surprised to find that it contains most of the answers you need.

Photo Credit: Ky

Categories
disability Emotion Lifestyle Patient-Centered Care Psychology

Nodding Along

My grandmother was a strong and compassionate Egyptian woman, a mother of three, and a pathologist. On a glass slide, exactly like the ones she used daily, cells from her colon biopsy were identified as undifferentiated, and within days she was diagnosed with Stage IV Colon Cancer.

Although I am learning how to care for people in sickness and health, someday, the chest compressions will be applied to my chest. Disease knows no discrimination, and death unites us all. Thousands of cancer diagnoses and precise and growing knowledge of cancer cell types did nothing to protect my grandmother from that which she knew so much about.

In Egypt, cancer is called ’the bad disease’, and bad it is. Over the next couple months, we watched as the bad disease took our beloved grandmother away from us. During that time, my family members, and my grandmother, had to make a series of challenging decisions that they were very obviously not prepared to make.

Medical advancements, although the main reason we are living longer lives, have caused the complexity and variety of end-of-life decisions to be ever increasing. Uneasy about the series of decisions that my family had to make and handicapped by my ignorance, I found myself reading Being Mortal by Atul Gawande. Atul Gawande led me through a vulnerable and imperfect but inspiring conversation about death and dying, exposing our medical system’s inability to understand health beyond the one-dimensional, and presumptuously noble, endeavor to prolong life at any cost.

While reading Being Mortal, I found myself enthusiastically nodding along, agreeing with the theme of the book: we need to change everything about our simple but destructive approach to aging and our increasing elderly population. Our singular approach to prolonging life simplifies complex social and medical decisions. It seems the attitude now is that longer life is all that matters. Ensuring nutrition and shelter is our only standard for a viable living environment for the elderly. We are failing our parents and grandparents.

Atul Gawande’s presentation of ideas changed how I perceive aging and our healthcare decisions at the end of life. I became a strong advocate of having conversations about the inevitability of our death and the choices we want to be made during our end-of-life care. I was convinced that society and healthcare should ensure that the elderly remain the authors of their own stories for as long as they are willing, and actively empower them to do so. Nutrition, shelter, and minimizing fall risk are minimums of care, not acceptable standards.

The Literature in Medicine Student Interest Group at my school decided to read Atul Gawande’s Being Mortal, and I could not be more excited. In the middle of our meeting discussing the book, as I was passionately sharing my ideas, it occurred to me that although I was full of strong opinions, I had done absolutely nothing to be a part of the solution. My grandfather had come to live with us after his wife of 55 years, my grandmother, passed away from colon cancer, and my only roles/concerns in his care have been to ensure food, sleep, and meds. My strong opinions had not inspired my actions.

Nodding along to Atul Gawande’s criticisms of our medical system is easy, but having an honest conversation with my grandfather about his priorities and end-of-life care preferences as he reaches 90 years of age is not so easy. How might I empower my grandfather to continue to be the author of his story? Believing that healthcare is a right and not a privilege is easy, but carrying out the responsibility that this belief invokes is not so easy. How might I work to help provide all my neighbors with equal access to high-quality care? Practicing the invaluable intervention of presence is not easy, and working day after day to hone my abilities at the art of empathy is not easy. How might I overcome my doubts, fears, and insecurities, and avoid being frozen into lack of compassion?

Too often my strong opinions do not inform my actions. Too often my hate for dysfunctional and unjust systems overshadows my love for the people in the systems. I call myself to love my neighbors more than hate the systems, for love is actionable and hate is stifling and tiresome. Let love fuel the tank, for compassion-based activism is the only kind that goes the distance.

Photo Credit: Dan Strange